I recently had the chance to connect with Louise Banks and her son, Ben Folland. Louise is a big advocate for the Meniere’s disease community in the UK, but today, Ben has the spotlight. He recently surveyed 800 Meniere’s patients to find out what treatments they had tried and if they were effective. His results were submitted to the Meniere’s Society as […]

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(Press CC for captions on the video) When you live with a rare and complicated illness like Meniere’s disease, there’s this constant sense that you’re fighting an unwinnable, uphill battle, and it’s terrifying. It creates this pressure cooker reality of pain and suffering and confusion and fear. A reality with an entirely new set of rules written […]

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Clock face and calendar in sky

“Be soft. Do not let the world make you hard. Do not let pain make you hate. Do not let the bitterness steal sweetness. Take pride that even though the rest of the world may disagree, you still believe it to be a beautiful place. – Iain S. Thomas, Author Another year gone and once […]

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Vertigo, Dizziness, Disequilibrium: Battling Chronic Nausea

We’ve all been sick at one point or another, and everyone knows what it’s like to be nauseous. But when you live with Meniere’s disease, or any other vestibular disorder, you’re probably more intimately familiar with nausea than most. When your vestibular system is compromised, and vertigo, dizziness, or disequilibrium strikes, nausea occurs because your brain, […]

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Finding the right doctor to treat you for Meniere’s disease is challenging, but it’s one of the most important things you can do, especially early on. Meniere’s disease is somewhat rare and the reality is that many doctors will not have a lot of experience treating it, if any at all. Even Ear, Nose and Throat (ENT) doctors […]

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In the process of writing my new book, I had to do a massive amount of research and ended up with a long list of tinnitus related companies, resources, links and more. And now that my book is finally finished, I realized how helpful a comprehensive list like this would be for the community. So I turned it into a post! Consider this my […]

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In my life with Meniere’s Disease, there are few things that I find more frustrating than a great day ruined by brain fog. It can be so disheartening. After several difficult weeks of intense, constant disequilibrium, I’ve been back on a somewhat productive streak. And as a result, my new book is finally finished. My paperback […]

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In part one of this series, I talked a little bit about tinnitus, and how the only question that really matters is: “Does it bother you?” I argued that the noise itself isn’t even really the problem you should be focusing on because you can’t control the noise. The real problem is our reaction to the […]

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