I recently had the chance to connect with “S” through her wonderful blog, the Chronic Advocate. S is a licensed psychotherapist and struggles with multiple chronic illnesses including bilateral Meniere’s Disease, chronic Migraine with Complex Aura, and Migraine Associated Vertigo. Her writing is largely focused on patient education for migraine, Meniere’s Disease, chronic pain, and […]
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I’ve always loved inspirational quotes. There’s just something so satisfying about seeing the simple truth distilled out of a complex idea. I hang them all over my house. Quotes are powerful too. The right quote, seen at the right time, can change the direction of a person’s life. It can uplift us when we’re down and motivate […]
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Lifestyle changes are the first line of defense for every Meniere’s disease patient. Some people respond to these changes better than others, but everyone seems to improve to some degree, even if they don’t benefit as much as they had hoped they would. In this 16 minute video, I outline some of the most important lifestyle […]
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When I was diagnosed with Meniere’s disease, I thought my life was over. I was only 24 years old. After six months of suffering, I finally knew what was wrong with me and it wasn’t going away any time soon. By all accounts, it was going to get worse…much worse. It was a dark time. […]
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Today, I’m going to try something a little bit different. Instead of writing one cohesive long-form article, I decided to write a bulletin style post about a few of my latest discoveries, obsessions, and my new favorite low-sodium snacks! Low-Sodium Snacks: Of all the challenges that come with maintaining a low-sodium diet, snacking has always been […]
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When you live with Meniere’s disease, fear can pervade every aspect of your life. We fear having a vertigo attack when we’re out with friends. We fear that our loved ones won’t understand what we’re going through. We fear our doctors won’t know how to help us, or know what to try next. And the fear makes it […]
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I recently had the chance to connect with Louise Banks and her son, Ben Folland. Louise is a big advocate for the Meniere’s disease community in the UK, but today, Ben has the spotlight. He recently surveyed 800 Meniere’s patients to find out what treatments they had tried and if they were effective. His results were submitted to the Meniere’s Society as […]
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(Press CC for captions on the video) When you live with a rare and complicated illness like Meniere’s disease, there’s this constant sense that you’re fighting an unwinnable, uphill battle, and it’s terrifying. It creates this pressure cooker reality of pain and suffering and confusion and fear. A reality with an entirely new set of rules written […]
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“Be soft. Do not let the world make you hard. Do not let pain make you hate. Do not let the bitterness steal sweetness. Take pride that even though the rest of the world may disagree, you still believe it to be a beautiful place. – Iain S. Thomas, Author Another year gone and once […]
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We’ve all been sick at one point or another, and everyone knows what it’s like to be nauseous. But when you live with Meniere’s disease, or any other vestibular disorder, you’re probably more intimately familiar with nausea than most. When your vestibular system is compromised, and vertigo, dizziness, or disequilibrium strikes, nausea occurs because your brain, […]
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