(UPDATED AND EXPANDED FOR 2019) Living with Meniere’s disease is not easy. When the symptoms are at their worst, it’s debilitating. But even if you can get the vertigo under control, you still have to contend with the Tinnitus, brain fog, fatigue, and hearing loss. And through it all, there’s the fear. When so much […]
Read More →I was never exactly free, but when I was a kid, I could go with the flow. I went on adventures with my friends as we rode bikes and played games that stretched across the neighborhood. We would all meet in my backyard every day and play for hours. We were the last of […]
Read More →For a long time now, I have lived with a chronic and invisible illness called Meniere’s disease. At this point, I have learned to live with it and on most days, I’m able to manage my symptoms surprisingly well. But there is no cure for my condition; it’s always there, lurking in the shadows, waiting […]
Read More →Denial is my go to move. It’s kind of my thing. Eventually I get past it, but at first, it’s always denial. I’ve denied adversities, big and small, with the best of them, but my confrontation with Meniere’s disease is one for the history books. I was diagnosed by a terrible doctor. He was […]
Read More →***Para leer en Español, haga clic aquí.*** Pour lire ce post en Français, cliquer ici.*** For more than 150 years, our understanding of Meniere’s disease has barely changed. Our diagnostic criteria has improved, but little else. While the rest of the medical-industrial complex sees explosive growth year over year, Meniere’s disease sufferers have remained a […]
Read More →Even when it seems like everything is going great, when my Meniere’s symptoms are in check and life is good, I still end up dealing with brain fog. It can be so frustrating. In the last several months, since publishing part 1 and part 2 of this series, I have stumbled across three new powerful […]
Read More →On one hand, I was lucky. I always had people who were willing to help. But 99% of the time, it didn’t matter. In fact, it usually made everything worse. Because for me, asking was the hardest thing in world. I don’t know why or when or how it happened but at some point, life […]
Read More →The world is full of pink ribbons, yellow wristbands, and walks for a cure. Chronic disease and tragic illness are an unfortunate part of life that surrounds us always. Raising awareness has always been an important strategy for winning the war against disease. It directs research dollars towards new treatments and cures. It empowers the […]
Read More →Adversity: The universe has a twisted sense of humor. Sometimes, the forces of nature seem to conspire against us like we are unwitting participants in some kind of cosmic reality show that needs more drama. For whatever reason, life maintains the perverse habit of throwing us curve balls when we least expect it. Throughout our […]
Read More →UPDATE: There is now a part 3 as well. Click here to Read Part 3! Brain fog. That nebulous clouding of consciousness that seems to affect so many of us with Meniere’s disease. For years I have fought an uphill battle against brain fog and have spent countless hours researching ways to try to […]
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