As many of you know, I recently published a detailed breakdown of the products, tools, and supplements that I use on a regular basis to help me better manage my Meniere’s disease symptoms and improve my overall quality of life.

It was a big hit! I know that many of you found it very helpful, and I received countless emails and comments from everyone telling me about other helpful products and supplements that they used regularly basis and found helpful.

So that gave me a great idea!

You see Mind Over Meniere’s is just me, and even though I experiment a lot, I obviously will never be able to try everything, or even think of everything to try.

That’s where you all come in!

The Community List:

My idea is to create a massive community generated, crowd-sourced list of Meniere’s disease related tools, products, and supplements for us all to have as a resource.

So I ask you: What tools, products, and supplements do you use on a regular basis to better manage your symptoms and improve your quality of life with Meniere’s disease?

Simply leave a comment below with your answer! The list can be as long or as short as you’d like! If you can include links in your list, that’s even better!

Once everyone has a chance to respond, I will take everyone’s answers and create an organized, categorized reference list, with pictures, descriptions, and links to more information!

I hope you’ll all join me on this project and tell me about your favorite Meniere’s disease related products in the comments below!

Thanks everyone!

  1. NoiseBuster electronic noise canceling headphones. These cancel out noise like lawnmowers, saws and so on but still allow conversation. I experience the Tullio Effect–one consequence of which is that noise will shut my ears down. I use these every day. At $150 they are far better than anything else I’ve tried.

    For low sodium I use Heniz No Salt Ketchup–only 5 mg per serving and it tastes pretty darn good.

    Also low sodium, Patrick Cudahy makes a lower sodium pre-cooked bacon that is 115 mg for 3 slices. The slices are a bit smaller but at least one can satisfy a bacon graving with no guilt. And it heats up in seconds in the microwave!

    Incidentally, I’ve had Meniere’s for 10 years and gradually lost my hearing until I have been essentially deaf for the last 9 months. I had a Cochlear Implant in August and it was turned on 6 days ago. I can hear again, although it is in the early stages and will improve over time with lots of practice. My doctor said that Meniere’s people usually do quite well with implants and he was correct.

  2. My Fab 5 supplements that I take everyday are 5,000 mg of vitamin D3, 400 mg of chelated magnesium, 2000 mg of fish oil, 1000 mg of vitamin C and 1000 MCG of vitamin B12. The Magnesium, fish oil and vitamin C are split into two doses per day

    • Hi Kathy,
      I’m taking pills of betahistine too for one month and a half, but I’m feeling my ears clogged most of the time. Is it also happened to you? In how much time the betahistine made effects with you?

  3. My wife drinks 16oz of fresh carrot and apple juice a day, read ” the Gerson Therapy”. It was suggested by her chiropractor. Also just bought the “Relief Band”, and that seems to really help with motion sickness.

  4. I suppose my absolute go-to without realizing it is my sound machine. I have tinnitus, as most of us do. It used to drive me to tears, all the while making it worse with my stress level. So, I bought it and an extra cartridge of sounds. White noise is my tinnitus 24/7. I get “gifts” of ringing and other things occasionally. When it happens I switch sounds. Normally, it stays on white noise. I read about biofeedback. I thought maybe hearing it all night would help me not notice so much when I am awake. It helps tremendously. I know because i turned I told off for a week to see if it really helped. It does.

    Then I have a pair of musicians ear plugs that help both with crowds, loud sounds, wind. I can go on. And I have on my own blog and also with Ryan, the founder of this particular company.

    Sunglasses, baseball caps, cotton balls, my cane, an awesome support system in my family all have helped me with coping, working around and plowing through this disease. Valium helps too. For vertigo that is. Zofran for nausea and vomiting. Watching my sodium, though it didn’t really change things for me. CBD has been an amazing benefit and contrary to what many think, it has not enough thc to be hallucinagenic. Which makes it legal in all states. Check your whole healthy foods stores.

    Unfortunately for me, no medical treatment we have tried has worked for me. None. I also have an autoimmune disease that can cause symptoms that mimic Ménière’s as well as autoimmune inner ear disease. My physician feels there is definitely an autoimmune component to my bilateral Ménière’s. So,I cannot say that any prescribed treatment has been beneficial with fighting this disease for me…So,I plow on…

  5. I put a few drops of an Essential Oil called Divertigo behind my ears when I start feeling dizzy. It really calms me down and helps. Also my doctor put me on an anti anxiety drug (celexa) which really helped me so that I’m not constantly worrying about the dizziness. Anxiety makes the whole thing much worse. It has helped beyond belief. Less salt, eyes shades a must and plenty of sleep have also been helpful.

  6. Sleephones! (or Cozyphones for those of us on a budget) My husband can’t sleep with the sound machine on, I can’t sleep without it… great compromise is this type of headphones. Very comfy and an added bonus can be worn like a sleep mask (also helpful for when at the ER with migraine.) I couple my cozyphones with either the Calm App (I use the 8 hr free meditation setting) or Sleep With Me Podcast (I never make it through an episode- usually fall asleep in the intro- the dude is amazing and hilarious!) Also, the band easily comes off the headphones and is washable – That was very important to me.

  7. Serrapeptase is the only thing I take for Meniere’s. It’s an anti inflammatory and anti edematous enzyme and it’s a very good natural alternative for steroids (prednisone, dexamathasone). I take one pill once a day. It helps me tremendously because Serc and diuretic didn’t work for me ( only steroides) and also helps with allegies.

    • Hello, Emilia.
      I’d like to know more about your tip. I also have allergies and feel my ears clogged most of the time. I’m taking pills of betahistine but still feel my ears clogged. This Serrapeptase helped you with these symptoms?

  8. Instead of using a drug as a diuretic, I use 500mg Dandelion Root Extract in capsule form…
    Contains potassium, and is also good for liver and kidneys…
    Has no known side effects.
    1 capsule, 2X a day, in morning, and evening.
    Also, I use “Divertigo” oil, behind ears when I feel slightly off balance, nervous, or tinnitus
    is strong… It has a relaxing effect, and smells like lavender…

  9. Adjustable Black Diamond walking poles with rubber tips. Bose sound canceling headphones. Soft neck pillow. Heavy wool quilt. Sun glasses with anti reflective coating on inside of lenses. Light weight cap (Marmot).

  10. I have been using Betahistine & Lipo-Flavonoid and have not had an acute attack in nearly two weeks now.

    Before my prescription, I would suffer violent rotary vertigo attacks every 2-3 days but would suppress the symptoms early when I began to feel dizzy (like walking on marshmallows) with Bonine (over the counter) for motion sickness and Claritin-D 24 hour (over the counter) an antihistamine that was effective for stopping the nausea & vomiting.
    But I have since moved on to using Lipo-flavonoid (over the counter) that has been effective for reducing the Tinnitus and has a money back guarantee. It can take 3 weeks or so before you feel results so the company asks that you use the product for 60 days before applying for a refund.

    Betahistine (prescription 16mg) has been my miracle drug for reducing the inner ear fluid (hydrops) causing the aural fullness (ear fullness) and vertigo. Walgreen’s carries it by special order and it requires a compounding technician to put it into 16mg capsules. You have to be VERY specific in how you ask for Betahistine so I have posted a link with the instructions on how to obtain it after your Doctor prescribes it. It comes as a bulk powder so you have to ask you Doctor to include instructions on placing the powder into capsules. The dosage strength can range from 24mg, 16mh or 8mg depending on the severity of your symptoms.

    Goof luck and best wishes with this wretched disease my friends

    https://lipoflavonoid.com/content/10-how-it-works

    http://www.dizziness-and-balance.com/treatment/drug/SERC%20sources.htm

    http://thecompounder.com/betahistine-a-cure-for-menieres-disease/

    • arcticblueice: How wonderful of you to include details and links in your contribution! So glad that you’re managing well and even though your closing has a typo, I love Goof luck more!

  11. Pine Bark, Vinpocetine,Vitamin D, E, B Complex,Lemon Bioflavonoids, CoQ10, L Lysine,Magnesium along with a low dose water pill. Low dose zoloft at night. No salt added Ketchup (Heinz), No salt added tomato sauce, shoprite Mrs Dash No Salt Chili and Taco mix. with shady brook ground turkey. Coleman Organic chicken,Kashi no salt cereal Organic Berry Fruitful and Rice Puffs any brand without salt. Fairlife skim milk ,Natures Bakery Stone Ground Whole Wheat Fig bars 35mg sodium. Skinny Pop snack size pop corn 50 mg a bag. No salt peanuts and all unsalted raw nuts. Cant live without these. I Could go on forever.

  12. I have had a Gemamycin injection into my left ear 5 weeks ago. I am still dizzy. It seems to subside very slightly each day. At the onset of vertigo accompanied by nausea I take one Ondansetron. It helps very much making both the vertigo and nausea subside. I also have had Rheumatoid Arthritis for about 10 yrs. I have had Meniere’s Disease for about five years. I switched Meniere’s doctor when I realized that my doctor wasn’t helping. I would throw up for up to two days with no relief and the diuretic I was in caused a dangerously low sodium content in my body. With my new doctor I no longer take a diuretic but take an anti-bacterial 3x a day plus my RA meds. My Meniere’s was diagnosed following an embarrassing incident when I threw up in the doctor’s office 5 yrs ago and was put in their waiting room where I kept throwing up in front of the people in the waiting room. Horrible experience!!!! All medical people are not professional!!!!

  13. I use these products from USANA.com. I can honestly say that this is the second time I’ve been on this regimen. I started after first being diagnosed in 2011 and within less than 2 years I didn’t even need the hearing aids any more nor did I have any vertigo symptoms. But then I went off and I paid the price! Big time. I started up again in January 2016 and since March 2016 I haven’t had even the slightest hint of a vertigo attach. My hearing is improved greatly (I had to start using my hearing aids when I went off the USANA regimen and could hardly hear…now there are some days that I can hear so well that I don’t use my hearing aids…not all the time is it that good, but it’s much better than it was.)

    Biomega – USANA 1-suppertime
    Core Minerals – USANA 2-am; 2-suppertime
    Ginkgo PS – USANA 2-am; 2-suppertime
    Magnecal D – USANA 2-am; 2-suppertime
    Proflavanol C – USANA 1-am; 1-suppertime
    Vita-Antioxidant – USANA 2-am; 2-suppertime

  14. No Sodium Products

    Vermont Bread Company – No Sodium Bread
    Rice cakes
    Bumble Bee Low Sodium Tuna
    Stay away from package frozen raw shrimp, they are loaded with tons of sodium even before they are cooked.
    No salt potato chips
    No sodium baking soda

  15. One thing that really helped me was to have a dimmer switch installed for my bathroom light. Who wants to be in a bright shiny tiled room with an overhead light when you’re spinning and throwing up? Not me for sure, and this mini reno has made it much easier for me to cope with nausea and vomiting. Also – I always have ginger ale on hand – it seems to settle my stomach. I take Serc (betahistine) and Domperidone and these prescription meds have kept my attacks to a minimum. Initially I was having attacks almost daily.

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