I’d Like to Help! Let Me Know How.
Today I decided to try something different.
Instead of my regular weekly blog post, I am going to turn the spotlight around to you. Yes you!
As I tried to think of a topic for this week’s article, I thought, instead of coming up with an idea, why not just ask what kind of content you would like to see?
So I ask you:
- Are there any specific topics you would you like me to write about in future posts?
- Are there any specific burning questions you have that you would like to see answered?
- Are there any topics that I’ve covered already that you would like me to explore further?
- Is there any new research you would like me to look into?
- Is there anything that you are currently struggling with that you would like help with?
- Is there anything that you don’t like and don’t want to see more of?
I’m here to serve the needs of community. Leave a comment below in response to any of the above questions and I will do my best to cover as much of it as I can moving forward!
And feel free to email me at anytime with questions, comments, or concerns at Glenn@Mindovermenieres.com. I always do my best to respond to every email!
Thanks everyone! With your help, 2016 will be an even better year here at Mind Over Meniere’s!
16 thoughts on “I’d Like to Help! Let Me Know How.”
Hello , I have been living with menieres for 2 years and It started 2 months after I got a root canal on the left side which is the bad ear side . My question is do you know if there is a link between dental work and meniers ? I asked my dentist and he looked at me like I am crazy lol . Thank ypu Daffanee Vogt
Hi Daffanee, I definitely don’t think you are crazy, but I also don’t have any hard evidence or research to share with you. All I can say is that you are not the first person I’ve heard suggest that there is a connection. I know of a couple people whose symptoms got much worse after dental work. Anecdotally there is something there, I’m just not exactly sure what the connection is.
I’ve was diagnosed 7 months ago and it continues to be a learning process. I have pain in several of my joints and my feet. Is there any connection with this and Meniere’s?
Hi Michelle, great question! I think it’s possible, especially if you are unbalanced most of the time, or having frequent vertigo attacks. If your balance related symptoms are bad, it could possibly cause structural issues in the way you walk and move that could cause joint pain or pain in your feet. Though I’m not a doctor, and I recommend you talk to your doctor to find out if there is anything else going on that isn’t connected to Meniere’s.
heyheychardonnay Charlotte Duthie
Micchelle, I was crippled from imbalance and then I found a line of shoes called Fit Flop and tried them and they helped to correct my posture and my feet quit hurting, I graduated to Vionics, an orthopedic line of sandals, I live in Hawaii, and they also work well. I found too that exercise helped, doing squats and side passes. I’m 65, if I an do them I’m sure you can too. 🙂 Again, what works for me may never work for you. It’s a crap shoot and you have to be proactive and find your own path.
Hello Michelle, I was diagnosed 2 1/2 years ago. I too have joint pain including my feet and recently getting worse. Wonder how many other MD sufferers have joint pain…..
I’d love to know your thoughts on exercise and the treatment/control of symptoms. My otologist told me that exercise is the one thing that I need to do every day and that I need to schedule it to make sure that I do it every day. Since that point, I’ve found that even if I go for a 10 minute walk I’m much better… But most days I work out for at least an hour a day. Thoughts?
Hi Kate, excellent question! First of all, I completely agree that exercise is a powerful way to improve your symptoms and it has been a critical part of my treatment/recovery since almost day one. Ultimately, the healthier you are in all other aspects of your life (diet, exercise, stress management) the better your body will be able to deal with Meniere’s disease. For me, exercise helps on so many different levels and I cannot recommend it enough. Exercise and its roll in managing Meniere’s is featured heavily in my book, but I haven’t blogged about it enough. Thank you for the suggestion!
Hi there, I was diagnosed 10yrs ago and find it hard to explain to my family and friends when they can’t see anything wrong except I walk like a drunk and don’t always hear them. When they want me to ‘just push through it ‘ I find it difficult and frustrating to make them understand I can’t always do that. Sometimes the brain fog (which my doctor says is not part of Meniere’s ) makes it to hard to participate. I am looking for a better way to explain how I feel.
Hi Cindy, I know exactly how you feel. Fortunately, I have the perfect post for you to share with them. I wrote it specifically for Meniere’s sufferers to share with their family and friends so that they might know what it’s really like. You can find the post here: Meniere’s Disease: Take a dizzying walk in my shoes
What vitamins regime do you use? I use multi vitamins high in B , probiotic, manganese, resveratrol, D. Low salt diet. I find the weather is playing a big part in this horror. I have functional dizzy days but lately an not able to function. I cant drive and am so frustrated trying to find a doctor that knows how to treat. I went to NYC and was told about the low sodium but that was it. Why cant we find doctors that know how to help us.? I have recently been under terrible stress due to my husband having open heart surgery and can barely function. Is there anything else that I can add to my daily intake of vitamins that might help?
Hi Mary, all great questions, and fortunately I can help with some of them right away! As far as vitamins and supplements, here is a list of most of the supplements/products that I use on a daily basis.
Secondly, I encourage you to check out my post on the lifestyle changes that can help to improve your symptoms. It’s a great starting point!
And lastly, I can help you find a great doctor! The type of specialist that you want to see, that will have the most experience treating Meniere’s disease (as well as all other balance and hearing disorders) is called a Neurotologist. They are ENT doctors that are subspecialized in neurological disorders of the inner ear. You can find a highly rated Neurotologist near you on http://www.healthgrades.com. Also be sure to check out my post on the importance of finding the right doctor. Best of luck Mary!
Hi Glenn, thank you for taking the time out for us all who are suffering. I have many DX combined Endolymphatic cochlear hydrops pressure being one of them but they only were able to get a reading from my left ear? So told Meniere’s I also have a Traumatic Brain injury from a car accident from 1993 symptoms did start until 13 years later? so I was also told visual issues, such a binocular suppression and dysfunction, impaired depth perception etc….then told Chronic Vestibulapathy from possible one time vacomycin IV for MRSA, then untricular dysfunction…I have been thru the ringer as far as Dr’s I literraly just sleep most of my day away from the also chronic fatigue an my vertigo attacks are strange, I am dropped down to the floor and it almost looks like a seizure, my head and eyes feel like they are being pulled violently left to right, and my body pulls left to right no control whatsoever….these happen violently every fews monthsI try to stop them when they feel like they are happening with the strangest ways but sometimes it works…I focus on a X I close one eye at a time snap my fingers clap my hands, do arm motions on each side I literally try to confuse my brain, it seems to work most of the time. but everyday dizzy wozzy, drunk bad balance cannotdo much of nothing it is like life in limbo everyday I try very hard to do the smallest of task and really have no family and no support system….any advice of information in regards to the entire vestibular system being damaged, meaning eyes brain and ears! ugh! sorry for the typos I also have carpel tunnel so I cannot read or talk for long also because of the dizzies I have to have audio books I want to read the one you wrote but no I am not capable, will it or is it available thru audio? Thank you, Karen I
I’m wondering about long-term prognosis of Meniere’s. If a person follows all the best advice (aka your book!) do you think it’s possible to keep working & driving & living fairly normally for the rest of our lives? I’m 59, have had Meniere’s for just over 1 year, and am a teacher of blind & visually impaired students in several different schools. (I need/hope to work for about 6 more years.)
And if vertigo attacks are what cause further hearing loss, and we limit vertigo attacks with lifestyle changes (supplements, exercise, diet, meditation, etc), and drugs as needed, do you think it’s possible to not lose much more hearing acuity?
On the FB “support” group page, I read so many miserable stories, that it makes me think I’m doomed to be bed-ridden in time. Even after some good months or years, people seem to get hit with relapses into horrible spells. Is there any research about whether these lifestyle changes can really help for the long haul? Thanks for asking, Glenn!
I’m 26 and was diagnosed around 4 months ago. I have been on those websites, the forums and found them all to be very depressing. My advice: avoid them. The people on those sites aren’t likely to be able to lead the full lives that keeps other suffers busy and from posting. Everyone symptoms are so different and we all react differently to different strategies of combating MD so try not to be disheartened. I think prognosis is the same unfortunately so no real answers from me.
I hope you’re keeping well.
Thanks, Suz. That’s pretty much what I’ve decided about the FB page, I’m not reading much of it these days. I just keep doing all I can for my health, try to stay positive & be thankful for what I have.