Hey everyone!

Glenn here with another edition of the Mind Over Meniere’s Bulletin!

The Bulletin is my way of sharing all the interesting things that come across my radar – things I think will be of value to the Meniere’s community.

Today’s edition is no exception. I hope you enjoy!

(Have an idea or topic you’d like me to cover in a future Bulletin post? I’d love to hear about it! You can leave a comment below or email me directly: Glenn@mindovermenieres.com)

This Week’s Bulletin Features:


Meniere’s, Cancer, and a Baby – A Personal Update:


It’s been an absolutely crazy year.

My son is officially six months old today (as I write this), and now that my life is finally settling back into something that resembles normalcy, I wanted to share some good news.

But first, a quick recap.

The C Word:

Eight months ago, my wife was seven months pregnant when we got the call that changed everything: “I know you’re about to get on a plane so I’m really sorry to have to tell you this. The baby is going to be fine, but the biopsy results came back – Megan has invasive breast cancer.”

Several weeks later, Megan was on the operating table for a lumpectomy surgery with a team of 10 doctors and nurses preforming the procedure and monitoring our unborn baby.

The surgery was a success, and my son Zack was born August 12th happy and healthy. He is the best thing to ever happen to us. And he probably saved Megan’s life. She would not have noticed the dimple in her breast had it not changed with her pregnancy, and we never would have caught it this early, before it could spread.

After only four weeks with Zack, we began what ended up being a highly successful IVF cycle to create and freeze embryos to preserve our ability to have more kids, as her fertility would likely be destroyed by the cancer treatment.

Then, only four days later, Megan started her first of five difficult chemotherapy infusions, followed almost immediately by daily radiation treatments for a month.

The Good News:

It’s been a rollercoaster of emotions, with some of the highest highs and the lowest lows I’ve ever experienced. But I’m so happy to announce that the hard part is finally over. On February 7th, with me and Zack cheering her on, Megan rang the bell as she finished her final radiation treatment.

It feels strange to think back on the last 8 months. It flew by, and yet it feels like 10 years have passed.

I experienced some of the most heart wrenchingly difficult moments of my entire life, but also so much joy. I scaled back my workload 70% to better support Megan and Zack, and Megan wasn’t working at all.

And though it was financially stressful, Megan and I have never been closer, and we haven’t missed a single moment of Zack’s life.

I got to see him laugh for the first time. I watched as the light came on behind his eyes, a flicker at first, and then all at once.

We got to really be there for him, and to connect with him in a way that would probably not have happened otherwise. And despite all the difficulty of the past few months, I’m so incredibly grateful for this opportunity.

Now we have finally reached the light at the end of a very long and dark tunnel, and life feels a lot closer to normal. Megan is finally feeling well enough to go back to work in a few weeks, and my symptoms are finally calming back down as my stress load diminishes.

Zack is finally sleeping 11 hours straight through the night too, which is the icing on the cake.

It’s hard to know what comes next, but you can expect a lot more from me here at Mind Over Meniere’s very soon!


CBD Deal you should know about:


Joy Organics 40% off Sale & Free Shipping (use promo code JoyDay2019 – Today Only – 2/15/19)

(I am not a doctor or medical professional of any kind. Always speak with your doctor before trying CBD or any other new supplements or medications)

I first discovered Joy Organics a few months back, and they have quickly become one of my favorite CBD companies. Their full spectrum (but also 100% THC free) CBD products have been a huge help for me over the past few months.

(Click here to read my full review of Joy Organics CBD for Meniere’s disease)

If you aren’t familiar with CBD, it’s one of more than 100 active compounds found in the marijuana/hemp plant and believed to be responsible for many of the medicinal benefits of the plant but none of the high. It’s entirely non-psychoactive, meaning you can’t get high from consuming CBD.

CBD has exploded in popularity over the past few years and has become a major part of my Meniere’s management toolkit. It helps to reduce my anxiety and stress levels more than any other supplement I’ve ever tried, and because both anxiety and stress are huge Meniere’s triggers, CBD helps me to manage my symptoms and improve my quality of life.

Joy Organics is offering 40% off their entire product line along with free shipping all day today (February 15th) in honor of their founder Joy’s birthday. If you’ve been thinking about trying CBD for the first time, want to try an innovative new company, or if you just want to get more at a big discount, this is a great deal!

Click here to checkout their CBD products and use the promo code JoyDay2019 for 40% off and free shipping. (Joy Organics now ships to Canada as well!)

P.S. Now that I am back to working more, you can expect a lot more CBD related content in coming months! I will be publishing a comprehensive guide on how to use CBD for chronic illness patients, new product reviews, a guide to baking with CBD, and more!

NOTE: When I first discovered Joy Organics, I reached out to them and they sent me several free products to test out. I receive many free products (and purchase many products too) but only ever end up writing about a very small percentage of them that work well for me and that I stand behind and actually use. Some of the links featured in this post are affiliate links. If you decide to purchase a product through these links, Mind Over Meniere’s may receive a small commission that goes toward the maintenance cost of the website.


In Search of a Tinnitus Cure with Dr. Rauschecker


Tinnitus Hub, the organization behind Tinnitus Talk (the largest online tinnitus message board), has just launched a new tinnitus focused podcast and the first episode features a fantastic, wide-ranging interview with Dr. Josef Rauschecker.

Dr. Rauschcecker is a highly prominent tinnitus researcher at the university of Georgetown, working hard to learn more about the neuroscience of tinnitus in order to discover a cure. You may have seen his viral TED Talk titled Tinnitus – Ringing in the Brain:

According to the Tinnitus Talk Podcast:

“The interview covers a wide range of topics, from Dr. Rauschecker’s own experience as a tinnitus patient to his theories on how tinnitus manifests in the brain. He hypothesizes on links with other brain disorders like depression, and the role of stress in triggering tinnitus. Dr. Rauschecker is hopeful about the prospect for a cure, but also talks about the obstacles to overcome, specifically the dire lack of funding for tinnitus research. We also discussed the role that patient communities can play in resolving this.

Dr. Rauschecker is currently raising funds for a new study into animal models for tinnitus. You can donate or learn more here.”

Click here to listen to the podcast episode with Dr. Rauschecker!


Brain Fog & Fatigue Eraser: A Sneak Peek at my Newest Brainwave Audio Project!


Back in 2016, I released the first version of the Meniere’s Symptom Relief Project. It’s a pay-what-you-want audio program that I designed to help Meniere’s sufferers cope with their symptoms using a powerful mind-altering audio technology called brainwave entrainment.

Over the past few years, it’s grown and grown. Today, thousands of you are using the Symptom Relief Project to help cope with many of the struggles a Meniere’s patient faces on a daily basis, like vertigo, fatigue, insomnia, anxiety, and brain fog.

What started as a hunch, and simple idea, quickly evolved into a helpful coping tool that far exceeded my expectations! And after all the positive feedback from the Meniere’s community, I eventually launched a brainwave training audio meditation program called Zen Vitality, a program to help people habituate and find relief from tinnitus, and a program to help you fall asleep.

But it’s been years since I’ve produced anything new.

That all changes now. I am currently hard at work on a brand-new audio program entirely designed to help you cope with brain fog and fatigue (final project name is still to be determined – let me know if you have any suggestions!).

The brain fog and fatigue relieving tracks on the Meniere’s Symptom Relief project have been some of the most popular audio I’ve created to date, so I’ve decided to expand on this in a big way.

My new program will have more than 25 hours of audio, all engineered to help you find relief from brain fog and fatigue by increasing focus, productivity, and mental energy in a variety of ways and for a ton of different situations.

Just to give you an idea, here are just a few of the 16+ different track types you can expect to find on the new program:

  • Relaxed focus for creative tasks
  • Intensive focus for complex tasks
  • Flow State (peak performance state) Induction
  • Energy Booster for Mood Improvement
  • Motivation and Productivity Enhancement for Difficult Tasks

It should all be ready in the next couple of weeks, so stay tuned! I will have more information and a special discount for my email list subscribers soon!


Favorite Recent Motivational Quotes for Chronic Illness:


“Every day of our lives, we are on the verge of making those slight changes that would make all the difference.” – Mignon McLaughlin

“Destroy the idea that you have to be constantly working or grinding in order to be successful. Embrace the concept that rest, recovery, reflection are essential parts of the process towards a successful and happy life.” – Zack Galifinakis

“Staying positive doesn’t mean you have to be happy all the time. It means that even on hard days you know that there are better ones coming.” – Unknown

“At the end of the day, we can endure much more than we think we can.” – Frida Kahlo

That’s all from me for today! Wishing you all a spin-free week!

Glenn

  1. Thank you for the update and Congratulations! Please explore LDN for your wife. She might need to take it for a very long time. I purchase it for my mom who had an aggressive tumor removed. She will be taking it for the rest of her life.
    Always love to read your bulletins. Your son is adorable.

    • Hey Nat, can you link me to some info about LDN? Not 100% sure what that is! And while the hard part of her treatment is over, she still has to start endocrine therapy, and will have to take hormone blockers for the next 5 years or so unfortunately. But that will be nowhere near as difficult as chemo.

  2. Hi, Glenn. Thanks so much for the update…and the happy news. I have kept Megan, Zack, and you in my prayers every day. Love the photos you shared!

    I’m eager to watch the podcast on tinnitus, as that is my worst symptom at this time. It’s grown progressively worse over the past few years, and nothing I’ve tried seems to help. Incidentally, more people are being diagnosed with Meniere’s–an indication that doctors are recognizing the disease. In the last year, I have heard from several friends who were diagnosed or knew of a family member who was diagnosed. Let’s hope this is a positive development. Maybe it will lead to more meaningful research and treatment.

    Again, thanks for your efforts on all of our behalves. Wishing you and your family many blessings this year.

    Sincerely,
    Linda

    • Thanks Linda, I really appreciate your kind words. (The video is an older ted talk – the podcast is linked in the post separately) And the podcast is great! But focuses more on the research for a cure, of which none yet exists. Luckily, habituation is a powerful option for lasting relief from tinnitus and something you can do right now!

      Check out my other blog Rewiring Tinnitus, it’s all about how I found relief from tinnitus and offers strategies, free tools, and a whole lot more!

      https://rewiringtinnitus.com

  3. Hi Glenn, it has been two years since I was first diagnosed and I just had my first flare up. It came on fast and I blame myself although from what the doctor said it might have happened with our without my “help”. I had been feeling really good. So good, that I thought I could stop taking the diuretic. Between that and eating out more, it took about 5 days for my symptoms to come back hard. The vertigo was light but the fullness and tinnitus was all encompassing and I couldn’t escape. I went right back on the diuretic and made sweeping diet changes but the fullness persisted. The doctor gave me tapered prednisone and while that made a dent in the tinnitus it didn’t touch the fullness so I had my first steroid shot in my ear today. I was caught off guard by how much it hurt but I think it came with all the emotion and exhaustion from dealing with this over the last few weeks but I cried hard in the office. It isn’t an overnight fix of course so more waiting and diet adjusting and I don’t really know where I will stand when things sort out. I’m just kind of flailing right now.

  4. Hi! This website is so refreshing to know that I’m not alone! My husband sent me the evaluation tool—this has been the first time that I considered my mental fog could be a result of the disease. Unfortunately I haven’t been able to find an ENT physician who will help care for my disease and only my neurologist believes I have Menieres and is treating me. Not ideal but at least I’ve kept full blown episodes at bay for now. I wish more people knew more about a disease that we know so little about…lol…if that makes any sense! Thank you for giving us a forum to connect with others!!

    • Hi Kristen, I highly recommend trying to find a highly rated local Neurotologist to manage your treatment. Neurotologists are ENT doctors who went on to further specialize in treating hearing and balance disorders and tend to have way more experience diagnosing and treating Meniere’s and other vestibular disorders. And you can find local Neurotologists by searching your zipcode on https://healthgrades.com

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