“Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid.” – Anonymous

Special Update: The Kindle eBook version of Mind Over Meniere’s: How I Conquered Meniere’s and Learned to Thrive available for pre-order now, and will be released, along with the paperback version on August 31st!

I can remember the exact instant when everything changed.

It’s seared into my brain like a photograph.

My doctor was supposed to help me. He was going to explain the vertigo and make it stop. It’s his job after all. You get sick and the doctor helps you get better. How could I have known?

Meniere’s disease.

My doctor spoke the words and in the blink of an eye, a terrible potential was made real. The problem wasn’t going to go away. The problem was permanent, and for a long time everything seemed impossible.

Meniere’s disease demanded so much of me. I missed so many opportunities, as if saying no would keep me safe.

But more often than not it was fear, not Meniere’s disease that held me back, and it took me a long time to understand that I often suffered more from regret.

An Impossible Idea:

I have always loved to write. I still have folders filled with old poems, stories and notes from when I was a kid. But I never considered myself a writer, and after I was diagnosed with Meniere’s disease, I didn’t write for a long time.

But nine months ago, as I was falling asleep I had an impossible idea. I realized that just maybe, I knew something that could help others and would be worth writing about.

I had successfully managed my Meniere’s symptoms for a while, but it had taken me so long to get to that point. My journey was chaos.

As I reflected back I realized that, for me, and for a long time, the missing ingredient was hope. I knew there had to be others who were still struggling. I wanted to start writing again. I wanted to share my story, but I was afraid.

I wrote five articles before I even created the blog. I was terrified to share my ideas with the world. When I finally set up the website and clicked publish for the first time, I panicked. It seemed like such a bad idea. Who was I to give advice on anything?

But slowly, I found all of you. I put myself out there and the community caught me with open arms. There were a lot of times when I was ready to give up. But you all kept me going when I wasn’t sure if I could… or if I should. I am forever grateful to the community and to all of my readers. You all have inspired me and helped me grow. I learn from you every day.

At some point, though, I realized the blog would never be big enough to say everything I needed to say.

Maybe I could write a book? No I could never write a book…that’s impossible. I dismissed the thought immediately. But it kept coming back. I couldn’t shake the feeling that it was something I needed to do.

Eventually I decided it was too important to not at least give it a try. It started with a list of 10 ideas. Those 10 ideas evolved into an outline. I dove deep and started researching to expand my understanding.

But I was absolutely overwhelmed. For several days I sat down to face the blank page. But the words wouldn’t come. How could I ever write a book?

Martin Luther King Jr. once said, “If I cannot do great things, I can do small things in a great way.”

My first real breakthrough came when I read this quote and changed my approach. Could I write a book? No, that was still impossible. But I could definitely write 300 words. I made a decision to sit down and write just 300 words every day. Most days it was a terrible experience. But often, I would come back the next day to find something beautiful left behind.

And as time went on, it started to build and build. Until one day, several months later, I realized that my manuscript was finished. 300 words at a time, I had accomplished the impossible.

I couldn’t help but smile. In my wildest dreams, I never thought I could write a book.

3d cover mock up square

Special Update: The Kindle eBook version of Mind Over Meniere’s: How I Conquered Meniere’s and Learned to Thrive available for pre-order now, and will be released, along with the paperback version on August 31st!

Mission IMPOSSIBLE:

So what impossible idea keeps you up at night?

If you are anything like me, there is probably something you want to do, right now. And while Meniere’s disease will limit you, you can overcome the fear. You can achieve the impossible, too.

For the ultimate secret is that most impossible things can be broken down into small possible pieces. And those pieces will slowly build over time.

I am proud and excited to announce that my book is finally near completion and will be available on Amazon in the next several weeks.

I have written the book that I wish I could have read when I was first diagnosed. But it’s not just for the newly diagnosed. It’s for everyone else too, no matter how long you have suffered. It’s a book that will even help your family and friends understand, and better support you.

The chaos, anxiety, and depression that come with Meniere’s disease can cripple you. There is enough conflicting information to make your head spin. It can destroy your quality of life.

But there is also so much hope. I wrote this book to show you that. To show you the potential and opportunity that lies trapped within you. To show you that there is always room for improvement and that you can learn to manage your symptoms and live in harmony with your disease. To show you that you can learn to thrive again.

And though I’m nervous to release my book out into the world, I am proud, and finally ready to put myself out there, one more time.

But no matter what next happens next, I encourage you to have always have hope. Find your impossible idea. Pursue it, nurture it, and share it with the world.

You can achieve the impossible, too.

Even with Meniere’s disease, you have the power to make a difference, never forget that.

*********

I’m giving away 10 FREE advanced release eBook copies of my new book: Mind Over Meniere’s – How I Conquered Meniere’s Disease and Learned to Thrive!

To win a copy, sign up for my email list here, and leave a comment below explaining what impossible thing you would love to do! 10 Winners will be selected from the comments at random on August 20th, 2015.

  1. Patricia Eastwoood

    I would love to just get myself organized, be able to travel to my little dream spot in Italy and finish writing my book. Last year, my Meniere’s threw me down some ancient steps at the Heritage site at Agrigento. I broke my ankle in 2 places, my face was smashed up too (not a pretty sight!), thought I would never recover, but I did!

    This year, with some diligence, I conquered the mental disabilities I endured last year, got my physical body back, and went on a solo trip to England and made it back in one piece.

    If I could achieve my greatest dream of making it to Italy, that would be my greatest achievement dream.

    • Hi Patricia, thats definitely a good dream, and if you were able to make it to England and back on your own, then a trip to Italy is definitely an obtainable goal! Thanks for sharing!

  2. I would love to be able to travel by plane again, to see my in-laws in Florida and my college roommate in England (I am from Chicago.) Congrats on your book. 🙂

  3. I have so many little things that I need to conquer such as get my home inside and out back in order. I don’t seem to be able to finish a task. One thing I do miss is being able to just get up and go. Travel is the one thing that is definitely missing in my life. The one place I want to be able to go more than anywhere is England to see my family. Not sure if a plane ride from Texas to England would be manageable. I have Hyperacusis too.

    • Hi Donna, you’re a fellow ex-pat! I am sure you CAN make it on a plane, and get to England. I too have the hyperacusis, and it’s tricky I know. Just as I thinking about how much I have gained this year (being good to myself, my diet and exercise), I woke up this morning to find myself dizzy and nauseous, even before breakfast. Only had a couple of errands at the local grocery store (which I drive to), but could not do it. Now I am working on it, taking some eucalyptus and ginger inhalation, drinking lots of water. I have BPV as well. But, you know, we need to keep reminding ourselves, and our fellow MD suffers to go on the attack, refuse to accept that this is it for us. We have things we can try and must. I MUST get onto trying those SPF flakes, once my budget gets sorted. Do take care of yourself and don’t give up on your dreams and plans. P.

  4. I feel like, very slowly, I am accomplishing my goal – but it is with fear and trepidation that I slowly edge closer to my dream pool. I left for Baja,Mexico from Colorado on August 8th (after my 50th birthday). We drove into Baja, my husband and I, and have been looking for a place to live. There are few places on earth where the barometric pressure is steady, so we have a few places to travel to – the jumping off point is Baja, Mexico. We have been searching for an apartment but MY inability to hear and OUR inability to completely understand Spanish is limiting us. BUT we have a tent so after one week of accommodations we are winging it!

    After a few days in Mexico I have noticed daily migraines and feelings of exhaustion. Yesterday I was able to catch what felt like was a full blown vertigo attack coming on. That is rare – being able to catch an attack. Knowing my triggers has become a godsend – barometric pressure fluctuations and allergies.

    My fear is that I have made a mistake and I want to run home. This is my typical response; run home and hide in the comfort and silence of my bed. I believe I can find my gumption and travel south, further into the desert and away from my allergic reactions. I pray this is a good idea before I cry and tell my husband I’ve made a huge mistake.

    This morning, after a huge sneeze and cough attack due to severe allergies, I’m going to tell him lets keep going.

  5. I would love to have my hearing restored enough to be able to communicate better in company. I find my deafness draining. Communication is so important and its so good that you can communicate and share your experience with us through your book.

  6. Hi. Congratulations on the book ! My daughter is due a baby next month and although she only lives an hours drive from me I would love to be able to drive myself to her house and spend quality time with her and my first grandchild without having to depend on others for driving me there. That is my greatest wish.! I’m in the UK. But love your blogs. Good luck with the book and good luck to the others who have posted. I hope you fulfil your dreams real soon x

  7. Way to go and find upbeat solution for thriving with meniere’s. My dream is to ride a waterbike on the canal. It will make me feel sick, but if I just keep going, my brain will accept it and I’ll have a blast.

  8. Last year(2014) at age 71 in June, I was at home watching a program on the TV when all of a sudden, the TV screen shifted about a foot without me moving. I immediately had severe vertigo and nausea. This went on for two weeks with doctor’s appointments etc. and then began to settle down. My internist sent me to an excellent specialist who after a multitude of testing said ” I am sorry but you have Meniere’s disease and there is no cure”.

    I know most people that read this blog know exactly how I felt. Since then then after learning triggers, the attacks have decreased intensity and increased the interim time to the point that at times I believe I won’t have any more attacks. Guess what? Then I do.

    Well I have joined a gym, lost weight, increased my walking, added to my many hobbies and have kept incredibly busy which I believe decreases the time spent thinking about Meniere’s. When I do have an attack, I have activities which I can do if the attack is not too bad. My wife and I do have to be careful about plans but otherwise I believe I have attained what I thought was impossible the first few months after the initial diagnosis.

    Needless to say your blog has given me lots of encouragement and hope! I do appreciate it!

  9. Congratulations! Your blog has so helped me…I love your just get out and go for it attitude! I’m over fifty but refuse to let this define me. I have three “impossible” dreams.: go back to Europe, become a published author, and start work on a PhD. Guess I better get busy!

  10. It is my dream to be able to,fly again. I do genealogy and would love to visit the countries my roots are in. Italy and Ireland. I did accomplish one thing, I became a published writer in 2014 despite my Meniere’s Disease. I have not flown since 2010 and all my family is out of state. No one visits me but would love to see family someday. I take each day as it comes and remind myself I may be able to do a little more later on. My book is available on Amazon, Finding My Life through The Children’s Home. I am looking forward to your book Dennis.

  11. I would love to go swimming in the Ocean again. Oh, to be able to bodysurf like I used to… Then again, somedays I feel like I am bodysurfing on dry land.

  12. Would love to be able to take a cruise with my family. It is #1 on my bucket list. But afraid of being dizzy & miserable the entire time.

  13. Today is a good day so nothing seems impossible. I take things minute by minute and always have a back up plan. I have found mine is unpredictable so i give everything a try, celebrate the little accomplishments and when i need to heal find a way to make the best of it.

  14. I would just like to feel safe enough to drive my dad out of town for dinner, he can’t drive out if yown. Ultimate dream would be to be able to fly to Key West for vacation…I haven’t been on vacation since my first attack 8 years ago. But I hate to complain. Menieres will not go awsy, but I know people battling csncer, so I feel like a heel when I feel sorry for myself.

    • I’m so sorry Leigh, we all feel overwhelmed, anxious and sorry for ourselves at times! My tears flow almost daily! Be kind to yourself!! (((Hugs)))

  15. I would really like to win this book to give to my sister, Nicole, who was diagnosed with the disease over 15 years ago. However, her symptoms are progressively getting worse. She is not on Facebook, so I joined the support groups and show her what in reading about.

  16. I was diagnosed with this disease last November. When the doctor explain that I will have to live with this disease for the rest of my life, I thought how I’m going to live with this disease for 50 more years since I’m only on my 30’s and I planing to live 80 years, plus I have big plants for my live! I want to be a nurse, and I want to have a baby, so I decided to not feel sorry for my self and not to give up.

  17. The truth in the quote is so obvious and so liberating for all who struggle with problems and who are forever trying to chase someone else’s dreams. As Meniere’s sufferers we need to stop, reflect and focus on resolving to make use of what we individually have: our unique, hitherto untapped resources and talents and hone those to release ourselves and others from the negatives of this affliction. I have begun to realise this and would love to see how your book will help us to conquer this debilitating disorder, regain life and change from despair to fulfilment. May you reap nothing but success from your achievement, bravery and desire to share with others.

  18. Congratulations on your book. I look forward to purchasing a copy in support of your efforts.

    My goal is to overcome the fear of having a Meniere’s attack and gain greater confidence in my ability to get through those bad days.

    Thanks for sharing your story. All the best.

    Cara in Ontario, Canada

  19. Congratulations on your book. I’ve been living with Meniers since 1995, and went from an over achieving profession to a doubtful one over several years. My goal would be to overcome my fears of falling over in the middle of a presentation, and regain the confidence and determination I once had. I want to change the “Impossible”, to the “Possible”!

    Thank you for your inspiration!

    Dawn from Arizona

  20. Congrats on book! I hope there are dreams of dreams. They are far in between, I try to set aside the Disease and what happens, happens! It is life and it is alittle more difficult to do things. I have an eight year old. I have no other choice but to do what needs to be done. even it is to ride a stimulator rollercoaster. What fun! I was a disaster afterwords. Spinning, walking everywhere, crashing into everything, and other stuff. Good thing everything was nailed down!! It is a dream that everyday I try to try new things regardless what the outcome is on me, but a smile and the joy of my son…

  21. I want say thanks to you for the website. I can’t wait to get the book free or not.

    There were many times after being diagnosed with Meniere’s that I felt my life was over. I am a guitarist and singer along with doing instrument repairs. This pretty much ended 6 years ago. I couldn’t even stand the sound of the guitar. The tone of the strings made me feel like I was going to get sick. I couldn’t hear the blend between voice and instrument. Everything was muddied. As the disease progressed I spent months in bed dealing with the vertigo. I have been to 6+ ENTs each giving me different things to try with little or no success. I must say suicide entered my thoughts many times. Thankfully with the support of my wife, close friends and support websites like this one and Menieres.org I have been able to progress to a point of stability. There are still bad days but they are fewer as I’ve learned to recognize the triggers.

    My goal has to just be able to play and sing again. I am now able to play guitar but have not yet been able to play and sing do to fullness in my affected ear. But it is progress and I stay positive with the support I have.

    In closing, for all those others dealing with dreaded disease do give up hope! Take it one day at a time and try to stay positive.

    Thanks, Michael

  22. I dream of continuing to get better and learn more and more how to manage my symptoms to keep them under control. I’ve been doing pretty well lately, but there are still some things I miss. If I could have these back, I would: go to concerts and dance right up front by the stage, I would climb tall mountains and enjoy the view down steep drops with no fear of having a dizzy spell that would send me over the edge, I would partake in conversations and KEEP UP with what people were saying, I would go into the wilderness away from all noises and enjoy the estranged sound of silence. Ahhhh.

    Notify us when your book is out. I want a copy! Your article on meditating to control tinnitus has been a lifesaver for me.

  23. I’m 20 years old and I can’t work, I have no money and if it weren’t for my friends family I’d be homeless. I’m in the beginning stages of fighting for disability and it’s already being very difficult. My attacks get worse every day, I eat little so I have a less chance of puking. I’m almost always bedridden and when i do have a good day I spend it cleaning so I feel like I still contribute. My impossible dream is to have a normal life, to be able to have money to spend on food and other daily life needs. My impossible dream is for people around me to understand how exhausting it is to have Menieres.

  24. My goal is to learn sign language – enough to have a conversation with someone, and to take an Alaskan cruise during whale season! I have lived with Meniere’s over 30 years and even though I always want to retreat to a safe place, I force myself to go outside my comfort zone and enjoy most of what life has to offer (no more roller coasters for me). The one thing I absolutely hate about this disease is I have now lost 50% of my hearing (wear hearing aids thank goodness) and can no longer hear music the way most people do. I guess I’m tone deaf. This really brakes my heart and I still struggle with the regret all the time.

    I love your blog Glenn and look forward to reading your book, free or not. Glad you took the leap of faith and became a writer; proud of you!

    Thanks,
    Jill from Atlanta

  25. My goal is that I am getting married next year and I want to be able to enjoy my day without worrying that my Menieres will take centre stage and not me I live in hope x

  26. So happy for you that you were able to write this book. This is a disease that takes courage, and I feel that those around us do not know how courageous we all must be. As for my dream… I would love to be able to make a commitment to do something in the future without feeling fearful about how I may be feeling that day. I realize that I try to not commit myself to things due to fear of having to cancel and seeming like I am a flake or don’t care….

    • I know exactly what you mean. I used to do the same thing. I stressed for 6 months over whether or not I should chaperone my son’s field trip because what if I had an attack that day? What if I had one on the bus on the way there? What if I embarrassed myself and my son by vomiting and being a mess during this hypothetical attack? Anyway finally I said eff it I’m not worrying about this nonsense. I signed up for the trip and just made sure I had my meds with me. We ended up having a wonderful day of many memories that I was almost too scared to let myself have.

  27. My partner has a new diagnosis, and everything feels overwhelming currently. I appreciate the trigger tool, and we are already starting to use it daily. I want to be the best support that I can, and track things with my partner so that we can better understand what triggers her. In the long term, I know she wants to be able to do extensive travelling without the anxiety about whether she will have an attack. My goal is to grow and learn with her, and be the best support that I can be.

  28. I would like to have my husband back instead of the person spends his days in the recliner watching TV in a brain fog. VA told him that it was not treaatable instead of suggesting ways to “manage it”. At that point he just gave up.

  29. So many of my friends play roller derby & I was a non-skating official for many years (Thanks Menieres!) ha! That also rhymed. maybe I too am a writer?!

    Anyway… I wish I could skate on a competitive level like them. And also… paddle boarding. I’d love to give that whirl… but not until I stop feeling g like I’m already on one on solid ground. 😉

  30. I was diagnosed about 5 years ago, about 1 1/2 years after first symptoms. I was lucky to find a great doctor who knew a lot about Menieres and got Keon the right medications. Still some fear about having vertigo but I always have my Valium with me to stop the attack.
    If I meet a newbie to Menieres I share my story and let them know they are not alone.

    • Thanks Keith! And I completely relate. At the very least, you can learn to address the fear. You may get a vertigo attack, but that doesnt have to keep you from doing the things you want to do.

  31. I was just diagnosed this spring and have a “mild” case of MD, at least for now. I am an itinerant teacher, going to 5 different schools to work with students who are blind & visually impaired. My goal is to be able to continue driving & teaching for several more years, and manage all that goes with it. I sing with a large church choir, and hope to be able to continue that also, but with hyperacusis it’s difficult sometimes.
    Looking forward to reading your new book! Will it be in print or just digital?

  32. Well let’s see… First my impossible dream was to get my motorcycle license which seemed like a lost cause after being diagnosed with Meniere’s. But guess what? I did it. Next up was skydiving…guess what? Did that too! Now I have my sights set on being a Nurse Practitioner. Well I’m now an RN and was recently accepted into grad school. I should be an NP in about 3 years! I refuse to let this disease limit me. It takes enough from me as it is. Glad to read your blog and ‘meet’ a like minded survivor.

  33. I would love to take a risk and leave my financially-stable job and do something else (even though I haven’t figured out what that ‘something else’ is exactly.

  34. Thank you for writing your new book!! I was finally diagnosed with Meniere’s Disease in December of 2011. I had all the symptoms except for vertigo… then it came with a vengeance! I was having episodes 3 to 5 times each week lasting as long as 51/2 hours each. Each attack was “worst case scenario” kinds of attack where I was entirely incapacitated, unable to stand up, read, or do anything, except vomit… The times I did not have it I was resting as the exhaustion was overwhelming!!! I became reliant on others for transportation and house cleaning and bringing my family meals as I was unable to do these simple things for myself! My ENT had me try a variety of different things to help me with the vertigo and not even one of them could do a thing… OH MANNNNN!!! However, for me, diagnosis was a relief as I had HOPE something could be done to help me!!!! And Praise the Lord!!!! I went to see Dr. John House of the House Ear Clinic in downtown Los Angeles about 9 months following my diagnosis. After talking with me following various hearing diagnostic tests, he told me that he could stop the vertigo!!!! He also said that for the other symptoms there was nothing that could be done. Although I have significant balance and hearing losses, as well as loud tinnitus of the rushing variety, barometric pressure issues, hyperacusis, and so on, I can and am “learning to live with these things,” but at least I’m not continually having vertigo… I’m so very thankful!!!! So, I’m all over the “stop the vertigo” option and Dr. House did a surgical procedure involving the insertion of an endolymphatic shunt between the vestibular canal and the eustachian tube in my ear that is affected by Meniere’s. I want you all to know that this surgery REALLY works!!!!! Again, I praise the Lord for his mercy and goodness towards me that I was able to have this surgery!!!! I have had about 3 or perhaps 4 minor attacks since the surgery, but there are as though nothing really in comparison to what was going on before the surgery… I have learned what brings them on, for me at least, such as a heightened ramping up in loudness of my tinnitus. So now on the rare occasion I have a feeling of uneasiness, I take an anti-vertigo medication and I am able to still function 99.9% of the time, although I may not be at my “best…”
    Since this was not the only health concern causing me challenges at the same time, just 2 weeks ago the other issue was discovered and now I have a clean bill of health and feel better than I have in years!!!!! As for what I desire to do, it is to serve with excellence in the voluntary roles I do as a chronologically gifted 68 soon to be 69 year old!!! I pray for you and those who are writing in, that they as well will find relief for their vertigo so that they can continue to live a virtually victorious normal life. All glory to Jesus Christ for what he has done for me!!!!

  35. While the summer months have been better I think there are two I have a hard time choosing. One is the fatigue that gets worse the more I do things . The other is riding in the car or driving. For some reason that really bothers me. So far not to the point of verto but, feeling off balance and sick. My hearing seems to go from louder to softer. The Dr has restricted how far i drive which prevents me from driving to visit my Dad and Daughter unles someone drives me. Overcoming everything would be awesome! I look forward to reading your blog and any other information.

  36. Hello, I would love to read your book. Just this summer I have had terrible attacks but I have found ways to overcome and maintain them mostly. However I have had a rotten summer because of it. Afraid to go places by myself or at all due to sudden attacks. I am maintaining a low sodium diet which is really not fun. I pray a lot and that keeps my stress level down. Win it or not I will get your book.

  37. I was just diagnosed with Menieres Disease three years ago at 21. It has taken over my life sense! I have recently found some relief from a Chiropractor but still struggle finding my triggers. I dream of going to school again and becoming a nurse. I would love to give back and help others in the same way they have helped me. I think going through a medical experience like Menieres will give me the upper hand at helping others. I would love to read this book!! Thanks for sharing with us 🙂

  38. I just want some form of quality of life back.I want to be able to drive again,thou I will need to get my driver’s license back.I quit driving in fear of killing some one.Now I just sit on the coach.Going on two years.The doctor’s don’t seem to care or know what to do about this disease.

  39. I have two dreams. First I would like to be able to control my symptoms. Second, I would love to take my family to Disney World. Both I feel are very much a possibility. Thanks for your honesty, Glenn, and instilling hope!

  40. I’d love to loose the anxiety to fly and drive :). I have BPPV, vestibular deficit and Menieres. Thank you for sharing your journey.

  41. I absolutely love to read about your journey in conquering the hurtles of this disease. When I see your emails and read them, it creates a new found hope that I will be okay for another 24 hours. I have PTSD and chronic hives as well. My “Possible Dream” is threefold. My first goal: I would like to get rid of the hives and decrease my anxiety.( I lost my ability to work due to Meniere’s, lost my husband to lung cancer and turned 40 within a 60 day time period). Every day I start my new journey towards a new mindset via meditation and relaxation. My second goal: I would like to get my washer and dryer on the first floor. My doctors have strongly suggested this. Their goals are my goals. My third goal: I would like to install a ramp so I can take my scooter outside. My dogs enjoy the ride too!. Congratulations on writing your book. Kudos to the author and the publisher. Meniere’s disease awareness is key. People with this disease and those around them need to be educated. If I am chosen to receive this book, I would definitely include it in my morning and evening meditation sessions. Thank you for sharing your recovery. It is deeply appreciated.

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