For the last few years, I’ve avoided posting about specific medical treatments for Meniere’s disease. I’m not a doctor or a medical professional, so I’ve been careful not to write anything that could be misconstrued or mistaken for medical advice. My purpose and my message has always been one of hope. But I know that […]

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I recently came across an interesting concept that explains a lot about the mindset of a person living with chronic illness like Meniere’s disease. It goes like this: When a person or an animal is repeatedly subjected to a terrible situation that they think they can’t escape or control, they eventually stop trying, even if escape […]

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I’m always searching for new and interesting ways to improve my quality of life with Meniere’s disease. Usually that amounts to a lot of trial and error, self-experimentation, and failure. But every once in a while, I stumble across something that truly grabs my attention and sets my mind running wild with possibilities. I’ve only […]

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“You are more powerful than you think you are. Act Accordingly.” – Seth Godin When you live with a vestibular disorder, life becomes a lot more complicated. Uncertainty follows you everywhere, like a dark cloud ready to rain. Even the simple things, like going out for groceries, or taking a shower, can suddenly become difficult […]

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I recently had the chance to connect with Louise Banks and her son, Ben Folland. Louise is a big advocate for the Meniere’s disease community in the UK, but today, Ben has the spotlight. He recently surveyed 800 Meniere’s patients to find out what treatments they had tried and if they were effective. His results were submitted to the Meniere’s Society as […]

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(Press CC for captions on the video) When you live with a rare and complicated illness like Meniere’s disease, there’s this constant sense that you’re fighting an unwinnable, uphill battle, and it’s terrifying. It creates this pressure cooker reality of pain and suffering and confusion and fear. A reality with an entirely new set of rules written […]

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“Be soft. Do not let the world make you hard. Do not let pain make you hate. Do not let the bitterness steal sweetness. Take pride that even though the rest of the world may disagree, you still believe it to be a beautiful place. – Iain S. Thomas, Author Another year gone and once […]

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We’ve all been sick at one point or another, and everyone knows what it’s like to be nauseous. But when you live with Meniere’s disease, or any other vestibular disorder, you’re probably more intimately familiar with nausea than most. When your vestibular system is compromised, and vertigo, dizziness, or disequilibrium strikes, nausea occurs because your brain, […]

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